I'm posting this today to ask my card making friends from around the world to help bring a smile to a child's face. One of my card making buddies over on the CardMaker / Card Swaps site posted a request earlier today asking for cards to be sent to a 15 year old girl in Ohio who is currently in the hospital in isolation while preparing for a bone marrow transplant. Below is the email from her mother explaining the details and her daughter's wish. So if you could find it in your heart to send a card her way...it would be greatly appreciated! Thank you!
My daughter was diagnosed with myelodysplastic syndrome
in late October 2011. At the time I had never heard of this disorder
nor did I realize how it would change our lives. MDS is very rare in
children, it is failure of a persons bone marrow. Bone marrow make cells
that turn into red and white blood cells or platelets. As her bone
marrow fails it brings her closer to acute myelogenous leukemia or AML.
Not much is known about MDS, usually men in their 50's get this and
research is ongoing to understand the disorder in children. The only
treatment is a bone marrow transplant, it is not a cure as the MDS could
reoccur. There are many risks associated with the transplant and all
who under go this do not survive. Finding a donor can also be very
difficult. We have been blessed in that her brother is a match and he
agreed to be a hero and save his sisters life.
February 6 my
daughter was admitted for the bone marrow transplant. She turned 15 on
the first day she received chemo. This process means she will be in
strict isolation for 6-8 weeks. She is not allowed out of her hospital
room and a limited amount of people are allowed to visit. She will
receive high doses of chemo to kill off all the cells in her bone
marrow. As most people know, she will loose her hair, and can get mouth
sores, experience pain in her bones, be nauseated and vomit. After the
transplant many new risks will present themselves, such as possible
rejection and all the side effects that go along with the medication
required to help prevent the rejection of her brothers bone marrow.
she gets home she will be in isolation for 6 - 8 months. As you can
imagine that isolation can be devastating for a teenager. Rach has been
very brave throughout discovering her diagnosis along with the beginning
of her chemotherapy. She is optimistic and plans on turning all of this
into something positive.
My daughter has only asked for a few
things after learning what challenges and treatments lay ahead for her.
The first was to survive the transplant, and go on to live a long life.
The second is that she wants to educate people about MDS and all that
goes along with the diagnosis. She feels the more people hear about it,
discuss it among others then perhaps more research could be done.
last thing she requested was to see if she could get a 1,000 cards from
people and teenagers like herself from around the world. Our hope is
that this email gets forwarded to people from their contact list. She is
hoping this could even reach ELLEN so someday she would have the
opportunity to go on her show and educate people about MDS and bone
marrow transplants. If this were to reach Justin Bieber, Racal Flatts or
Taylor Swift that would be awesome too.
If you are willing please forward this email and send her a card or letter to:
P.O. Box 1583
Hilliard, Ohio 43206
4 days ago